My happy baby boy: I think this one was taken a little over a month ago. Isn't he handsome? He really is the HAPPIEST baby I've ever seen. He lights up every time he sees me. He loves his Mommy. It makes my day every time.
We had a break from treatment for a couple of weeks and Izzy and I got to go to storytime at the library for those two weeks. She really enjoyed it, although it was something new so she was a little clingy to her Mommy at first. Here are a couple pictures of her playing in the kids section after storytime.
There is nothing in the world like watching your two babies loving on each other. I love to watch Isabelle make her brother laugh and smile. Even at such a young age, he knows that this little person is going to be important in his life.
We had long break from doing daily oral medication with Isabelle for awhile, and I don't think we fully appreciated it. The only thing she had to take for quite awhile was a preventative antibiotic on the weekends, and that one doesn't taste too bad, so she had gotten GREAT at doing medicine all by herself, with no parental intervention! Unfortunately though, we had to start back on the steroids recently, and those don't taste too good. She had to take them for 7 days, she has been off for almost 7 days, then she will start them again on Friday for another 7 days. We try really hard to give her plenty of time to do it on her own, and she knows that she will get a popsicle, a lollipop, or some other treat if she takes her medicine. We even mix it with chocolate syrup. We still usually end up having to intervene, which is really painful for all of us, but what do you do? She HAS to take it. Anyway, one night we had been begging and pleading with her for about an hour to take it and she finally did in our bedroom, and she wanted to eat her popsicle in there afterwards, so I brought it to her with a towel to catch the drippage. She was so exhausted that she fell asleep holding her popsicle and we had to get a picture.
Some more recent pictures of Jeb: He holds his head up great when he's on his belly and is rolling over some now too. How did he get to be so big already??
Isabelle is in the "Delayed Intensification" phase of treatment right now, and it is pretty much how it sounds: intense. It is the last phase before she starts maintenance, where she'll only go once a month, so they are trying to hit any remaining leukemia cells that might be hiding out in her body. She had to go to the clinic twice last week. On Tuesday for shots in her leg and Thursday for chemo in her port. The week before that she had a spinal tap and chemo in her port. Today she goes back for another round of chemo in her port. Like I said: intense. She has been getting really sick after treatments lately, so they gave her a prescription for anti-nausea, which does help. Some days, even if she's not getting sick, you can just tell that SOMETHING is bothering her. She doesn't feel good, she is moody, whiny, and cries A LOT. It's hard to know what to do as a parent. Sometimes I don't know whether she is really hurting, or if she's just throwing a fit because she is two. She doesn't know how to verbalize her feelings. I'm having a hard time finding a balance. I don't want to be too hard on her because I know she's going through more than any two year old should have to, but at the same time, I don't want to be too lenient on her because she will come out of this expecting the whole world to cater to her. What to do? Being responsible for shaping a little soul is hard enough! I worry about her a lot. Not just about her physical health, but about how all this is going to affect her mentally, emotionally, and socially as she gets older. I guess we just have to do our best and leave the rest to God, but that's easier said than done sometimes. Somedays I just feel like I can't find my center of gravity. I need to be strong for my children, but sometimes I'm just WEARY, and that's all there is to it. I have been taking comfort in this scripture lately: "Come to Me, all you who labor and are heavy laden, and I will give you rest. Take my yoke upon you and learn from Me, for I am gentle and lowly in heart, and you will find rest for your souls. For My yoke is easy and My burden is light." (Matthew 11:28-30) I do need lots of prayers though. I need prayers that God will help me to handle everything I say and do with Isabelle the utmost grace and wisdom. I need prayers that God will give me the strength to get through each day and not lose my patience. I need prayers that I can find my peaceful place when the storms around me are raging. I need prayers for humility to ask for help when I need it. I'm not very good at that. I don't want to be a burden on others. I need prayers that I will be joyful for my children's sake. It's not good for them to see me being down. I have read this scripture many times: "Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything." I want to be mature and complete, but the process sure is painful!
6 comments:
I love you so much Tabby! I just posted a blog last night and talked about how strong you are and how well you're handling this. I guess since you seem to be handling things I forget about the internal struggle that you must be having. I'll be praying for you and of course for Isabelle too. I'm really proud of you...you're a wonderful mother!
April
Bless your sweet heart, Tabby. Thanks for sharing your struggles. As I read your post, it all made complete sense, but I wouldn't have realized all that on my own, all the added struggles you're facing. I am glad to know there are some things I can pray about specifically. It sounds like you are leaning on God and His Word to guide you, which is obviously the best thing! As best you can, try to relax and know that Isabelle will make it through okay. You have already overcome so much! I think you can trust your instincts about when she's acting up because of her age, and when she's really truly just needing some extra help and attention. But it will definitely help if you're calm and hang on to that inner peace God gives you - I know from my own experience that when I get uptight and frustrated about everything, I overreact to whatever the boys are doing, no matter what it is.
Praying that you'll be able to lean on God's strength and peace. God will bless you!
Loved seeing new pictures of your little man! He is getting so big :) Your words touched me so much about your struggle with how to handle things. Are you doing the right thing etc... I say don't worry about spoiling her right now. Sure when its all said and done she will probably be expecting certian things and you'll have to 'wean' her off, but that is how most kids are when they've been sick. Izzy is just going through a much longer 'sick time' than the average child. And just remember that you are not alone! Every parent struggles with their decisions... it would be so much easier if we had specific instructions!!
Tabby, wanted you to know that I am constantly keeping up with you guys and praying for you. Motherhood is TOUGH. Period. Add to that having to watch your precious kiddo go through challenges... it reaches CRAZY-TOUGH. I am so sorry you all have to endure any of this, but will continue to pray that God show His MIGHTY power and works through it all!!! (and that you're given an extra dose of peace, comfort, and peace)
I've been thinking and praying for you alot, especially the last two days. You have been on my heart and mind. I know it has to be such a struggle and painful for you. I'll continue to lift you up in prayer. I want to help you whenever I can. I wait for you to call me, but I will actually start calling and checking on you and being more proactive too. Take care!
I love the expression, "God is in the details." We pray, work hard, analyze and agonize over every little thing, but in the long run God is in charge of those little details so we don't have to be. I'm so glad I don't have to be in charge of the details!
You are an amazing mommy. You can always follow your gut and you're heart. Izzy and Jeb are blessed to have the parents that they do. God made sure they had just the two people that they needed raising them.
You're always in our prayers. Even if we could forget, Noah wouldn't let us.
Little man is beautiful! Love Izzy's hair growing back, and I love their Mommy too! (Their Daddy is ok too...)
---Amber (sorry, my mom-in-law was logged in on hers)
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